SMA-028

Spinal Muscular Atrophy Type III (SMA-III)

Oceania 30 years old male New Zealand Total Cost: 837

Patient Condition

The patient developed difficulty walking and easily fell at the age of 5, and was diagnosed with SMA-III type at the age of 7. Genetic testing: homozygous deletion of exon 7 of SMN1 gene, and SMN2 copy number was 4. The patient was 12 years old at the time of diagnosis, could walk independently but had abnormal gait (wide-base gait), had difficulty going upstairs, and was positive for Gowers 'sign. The HFMSE score is 52 and the RULM score is 28. Respiratory function is normal. Mild scoliosis of the spine (Cobb angle 8 degrees). He had not received previous disease revision treatment and was only maintained with physical therapy.

Treatment Timeline

PhaseDetailsDate
Evaluation and treatment option selection
Risdiplam oral treatment initiated
Rehabilitation enhancement and functional maintenance
Long-term maintenance and follow-up

Treatment Outcome

beforeHFMSE 52, difficulty walking, difficulty going upstairs, positive Gowers sign, no disease modification treatment, and gradual decline in motor function
afterHFMSE 64 points, can climb stairs normally, the walking distance in 6 minutes is increased by 80 meters, motor function continues to improve, and daily life is completely self-reliant
highlightOral Risdiplam treatment increased motor function scores in patients with SMA-III by 23%, significantly improving exercise ability and quality of life