FFI-011

Fatal Familial Insomnia (FFI)

Europe 36 years old female Italy Total Cost: 256

Patient Condition

PRNP D178N mutation (129M homozygous), mother and aunt both died of FFI. Symptoms appeared 3 months ago, manifested as difficulty falling asleep, frequent nocturnal awakenings (>20 times per night), and mild memory decline.

Treatment Timeline

PhaseDetailsDate
Comprehensive assessment and early intervention
Sleep stabilization and symptom monitoring
Long-term maintenance and preventive care

Treatment Outcome

beforeTST 180 minutes, sleep efficiency 45%, MMSE 26 points, RT-QuIC strong positive
afterTST was maintained for 190 minutes (significant reduction in disease progression), sleep efficiency was stable at 48%, MMSE was maintained at 25 points, and RT-QuIC signal decreased by 25%
highlightASO gene therapy combined with fluvoxamine effectively slowed down the progression of the disease, maintained stable sleep quality, and significantly delayed the decline of cognitive function.